APBS

Quality of Life and Self-determination: References


The references or source material associated with this website do not necessarily reflect the views or policies of the Association for Positive Behavior Support (APBS) nor does mention of trade names, commercial products, or organizations imply endorsement by APBS.


Quality of Life and Self-determination References

  • Agran, M., Cavin, M., Wehmeyer, M. L., & Palmer, S. (2006). Participation of students with severe disabilities in the general curriculum: The effects of the self-determined learning model of instruction. Research and Practice for Persons with Severe Disabilities, 31, 230-241.


  • Bae, S. J. & Wehmeyer, M. L. (2003). Perceptions of self-determination on transitional outcomes: A study of Korean students, parents, and teachers. Korean Journal of Special Education, 10(2), 123-141.

  • Bambara, L. M., Cole, C. C., & Koger, F. (1998). Translating self-determination concepts into support for adults with severe disabilities. Journal of the Association for Persons with Severe Handicaps, 23, 27-37. doi:10.2511/rpsd.23.1.27

  • Bonham, G. S., Basehart, S., Schalock, R. L., Marchand, C. B., Kirchner, N., Rumenap, J. M. & Scotti, J. (2004). Consumer-based quality of life assessment: The Maryland ask me! project. Mental Retardation, 42, 338-355.


  • Carr, E. G. (2007). The expanding vision of positive behavior support: Research perspectives on happiness, helpfulness, hopefulness. Journal of Positive Behavior Interventions, 9(1), 3-14. doi:10.1177/10983007070090010201

  • Chambers, C. R., Wehmeyer, M. L., Saito, Y., Lida, K. M., Lee, Y., & Singh, V. (2007). Self-determination: What do we know? Where do we go? Exceptionality, 15, 3-15.

  • Claes,C., Van Hove, G.,Vandevelde, S., JosvanLoon, J., & Schalock, R. (2012). The influence of supports strategies, environmental factors, and client characteristics on quality of life-related personal outcomes. Research in Developmental Disabilities, 33, 96-103.


  • De Wein, M., & Miller, L. K. (2009). The teaching-family model: A program description and its effects on the aggressive behaviors and quality of life of two adults with intellectual disabilities. Journal of Positive Behavior Interventions, 11(4), 235-251. doi:10.1177/1098300709332344


  • Evans, D. R. (1994). Enhancing quality of life in the population at large. Social Indicators Research, 33, 47-88.


  • Felce, D. (1997). Defining and applying the concept of quality of life. Journal of Intellectual Disability Research, 41, 126-135.

  • Felce, D., & Perry, J. (1995). Quality of life: Its definition and measurement. Research in Developmental Disabilities, 16, 51-74.

  • Felce, D., & Perry, J. (1995). Assessment of quality of life. In R. L. Schalock (Ed.), Quality of life Vol. 1: Conceptualization and measurement (pp. 91-104). Washington DC: American Association on Mental Retardation.

  • Frankland, H. C., Turnbull, A. P., Wehmeyer, M., & Blackmountain, L. (2004). An exploration of the self-determination construct and disability as it relates to the Diné (Navajo) culture. Education and Training in Mental Retardation and Developmental Disabilities, 39(3), 191-205.


  • Hu, X., Wang, M., & Fei, X. (2012). Family quality of life of Chinese families of children with intellectual disabilities. Journal of Intellectual Disability Research, 56(1), 30-44.

  • Hughes, C., & Hwang, B. (1996). Attempts to conceptualize and measure quality of life. In R. L. Schalock (Ed.), Quality of life: Vol. 1. Conceptualization and measurement (pp. 51-61). Washington, DC: American Association on Mental Retardation.

  • Hughes, C., Hwang, B., Kim, J. H., Eisenman, L. T., & Killian, D. J. (1995). Quality of life in applied research: A review and analysis of empirical measures. American Journal on Mental Retardation, 99, 623-641.

  • Hyman, M. (2009). Standing at sinai with autism: A young man's bar mitzvah journey. Journal of Positive Behavior Interventions, 11(3), 186-192. doi:10.1177/1098300708329012


  • Isaacs, B., Wang, M., Samuel, P., Ajuwon, P., Baum, N., Edwards, M., & Rillotta, F. (2012). Testing the factor structure of the family quality of life survey - 2006. Journal of Intellectual Disability Research, 56(1), 17-29.


  • Jackson, C. W., & Turnbull, A. P. (2004). Impact of deafness on family life: A review of the literature. Topics in Early Childhood Special Education, 24, 15-29.


  • Keith, K. D., & Schalock, R. L. (Eds.). (2000). Cross-cultural perspectives on quality of life. Washington D.C.: American Association on Mental Retardation.

  • Kincaid, D., Knoster, T., Harrower, J. K., Shannon, P., & Bustamante, S. (2002). Measuring the impact of positive behavior support. Journal of Positive Behavior Interventions, 4(2), 109-117. doi:10.1177/109830070200400206


  • Lachapelle, Y., Wehmeyer, M. L., Haelewyck, M. C., Courbois, Y., Keith, K. D., Schalock, R., Walsh, P. N. (2005). The relationship between quality of life and self-determination: An international study. Journal of Intellectual Disability Research, 49, 740-744.

  • Lee, S., Palmer, S., Turnbull, A., & Wehmeyer, M. L. (2006). A model for parent-teacher collaboration to promote self-determination in young children with disabilities. Teaching Exceptional Children, 38(3), 36-41.

  • Lee, S. H., & Wehmeyer, M. L. (2004). A review of the Korean literature related to self-determination: Future directions and practices for promoting the self-determination of students with disabilities. Korean Journal of Special Education, 38, 369-390.

  • Lee, S. H., & Wehmeyer, M. L. (2007). A review of the potential for and impact of promoting self-determination as an instructional strategy for access to the general education curriculum for students with disabilities. The Journal of Special Children Education, 9(2), 62-91.

  • Lumley, V. A., & Scotti, J. R. (2001). Supporting the sexuality of adults with mental retardation: Current status and future directions. Journal of Positive Behavior Interventions, 3(2), 109-119. doi:10.1177/109830070100300208

  • Lyon, G. (2010). Enhancing the quality of life of people with intellectual disabilities: From theory to practice. In R. Kober (Ed.), Social indicators research series, Volume 41. New York: Springer.


  • Moyson, T., & Roeyers, H. (2012). ‘The overall quality of my life as a sibling is all right, but of course, it could always be better.' Quality of life of siblings of children with intellectual disability: The siblings' perspective. Journal of Intellectual Disability Research, 56(1), 87-101.



  • Nota, L., Ferrrari, L., Soresi, S., & Wehmeyer, M. L. (2007). Self-determination, social abilities, and the quality of life of people with intellectual disabilities. Journal of Intellectual Disability Research, 51, 850-865.


  • Openden, D. (2004). Review of no pity: People with disabilities forging a new civil rights movement. Journal of Positive Behavior Interventions, 6(1), 51-54. doi:10.1177/10983007040060010701


  • Palmer, S. B., Wehmeyer, M. L., Gipson, K., & Agran, M. (2004). Promoting access to the general curriculum by teaching self-determination skills. Exceptional Children, 70, 427-439.

  • Park, J., Hoffman, L., Marquis, J., Turnbull, A. P., Poston, D., Mannan, H.,...Nelson, L. (2003). Toward assessing family outcomes of service delivery: Validation of a family quality of life survey. Journal of Intellectual Disability Research, 47(4/5), 367-384.

  • Park, J., Turnbull, A. P., & Turnbull, H. R. (2002). Impacts of poverty on quality of life in families of children with disabilities. Exceptional Children, 68(2), 151-170.

  • Paul, A. S., & Frea, W. D. (2002). The importance of understanding the goals of the family. Journal of Positive Behavior Interventions, 4(1), 61-63. doi:10.1177/109830070200400110

  • Poston, D. J., & Turnbull, A. P. (2004). The role of spirituality and religion in family quality of life. Educational Training in Mental Retardation and Developmental Disabilities, 39, 95-108.

  • Poston, D., Turnbull, A., Park, J., Mannan, H., Marquis, J., & Wang, M. (2003). Family quality of life: A qualitative inquiry. Mental Retardation, 41(5), 313-328.


  • Reichard, A., Sacco, T. M., & Turnbull, R. (2004). Access to health care for individuals with developmental disabilities from minority backgrounds. Mental Retardation, 42(6), 459-470.

  • Renwick, R., Schormans, A. F., & Zekovic, B. (2003). Quality of life for children with developmental disabilities: A new conceptual framework. Journal on Developmental Disabilities, 10(1), 107-122.

  • Rillotta, F., Kirby, N., & Shearer, J. (2010). A comparison of two family quality of life measures: An Australian study. In R. Kober, (Ed.), Enhancing the quality of life of people with intellectual disabilities (pp. 305-348). New York: Springer.


  • Sailor, W. (2009). In memoriam: Ursula Arceneaux Markey. Journal of Positive Behavior Interventions, 11(4), 197-197. doi:10.1177/1098300709347108

  • Salmento, M., & Bambara, L. M. (2000). Teaching staff members to provide choice opportunities for adults with multiple disabilities. Journal of Positive Behavior Interventions, 2(1), 12-21. doi:10.1177/109830070000200103

  • Samuel, P. S., Rillotta, F., & Brown, I. (2012). Review: The development of family quality of life concepts and measures. Journal of Intellectual Disability Research, 56(1), 1-16.

  • Schalock, R. L. (1996). Reconsidering the conceptualization and measurement of quality of life. In R. Schalock (Ed.), Quality of life. Volume I: Conceptualization and measurement (pp. 123-139). Washington, DC: American Association on Mental Retardation.

  • Schalock, R. L. (2004). The concept of quality of life: What we know and do not know. Journal of Intellectual Disability Research, 48, 203-216.

  • Schalock, R. L. (2010). The measurement and use of quality of life-related personal outcomes. In R. Kober, (Ed.), Enhancing the quality of life of people with intellectual disabilities (pp. 3-16). New York: Springer.

  • Schalock, R. L., & Bonham, G. S. (2003). Measuring outcomes and managing for results. Evaluation and Program Planning, 26(3), 229-235.

  • Schalock, R. L., Bonham, G. S., & Verdugo, M. A. (2008). The conceptualization and measurement of quality of life: Implications for program planning and evaluation in the field of intellectual disabilities. Evaluation and Program Planning, 31, 140-150.

  • Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., Felce, D, Matikka, L., ... Parmeter, T. (2002). Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Mental Retardation, 40(6), 457-470.

  • Schalock, R. L., Gardner, J. F., & Bradley, V. J. (2007). Quality of life for people with intellectual and other developmental disabilities: Applications across individuals, organizations, communities, and systems. Washington DC: American Association on Intellectual and Developmental Disabilities.

  • Schalock, R. L., Keith, K. D., Verdugo, M. A., & Gomez, L. E. (2010). Quality of life model development and use in the field of intellectual disability. In R. Kober, (Ed.), Enhancing the quality of life of people with intellectual disabilities (pp.17-32). New York: Springer.

  • Schalock, R. L., & Verdugo, M. A. (2002). Handbook on quality of life for human service practitioners. D. L. Braddock (Ed.) . Washington, DC: American Association on Mental Retardation.

  • Schalock, R. L., Verdugo, M., Jenaro, C., Wang, M., Wehmeyer, M., Xu, J., & Lachapelle, Y. (2005). Cross-cultural study of core quality of life indicators. American Journal on Mental Retardation, 110, 298-311.

  • Shogren, K. A., Wehmeyer, M. L., Palmer, S. B., Soukup, J. H., Little, T. D., Garner, N. & Lawrence, M. (2007). Examining individual and ecological predictors of the self-determination of students with disabilities. Exceptional Children, 73, 488-509.

  • Shogren, K. A., Wehmeyer, M. L., Pressgrove, C. L., & Lopez, S. J. (2007). The application of positive psychology and self-determination to research in intellectual disability: A content analysis of 30 years of literature. Research and Practice for Persons with Severe Disabilities, 31, 338-345.

  • Singer, G. H. S., Gert, B., & Koegel, R. L. (1999). A moral framework for analyzing the controversy over aversive behavioral interventions for people with severe mental retardation. Journal of Positive Behavior Interventions, 1(2), 88-100. doi:10.1177/109830079900100203

  • Singh, N. N., Lancioni, G. E., O'Reilly, M. F., Molina, E. J., Adkins, A. D., & Oliva, D. (2003). Self-determination during mealtimes through microswitch choice-making by an individual with complex multiple disabilities and profound mental retardation. Journal of Positive Behavior Interventions, 5(4), 209-215. doi:10.1177/10983007030050040401

  • Smith-Bird, E., Turnbull, A. P., & Koegel, R. L. (2005). Linking positive behavior support to family quality-of-life outcomes. Journal of Positive Behavior Interventions, 7(3), 174-180. doi:10.1177/10983007050070030601


  • Turnbull, A., & Turnbull, R. (2000). Achieving "rich" lifestyles. Journal of Positive Behavior Interventions, 2(3), 190-192. doi:10.1177/109830070000200310

  • Turnbull, A. P., & Turnbull, H. R. (2002). Comprehensive lifestyle support: From rhetoric to reality. In J. Lucyshyn, G. Dunlap, & R. Albin, (Eds.), Families and positive behavioral support: Addressing problem behaviors in family contexts. Baltimore: Brookes.

  • Turnbull, A. P., & Turnbull, H. R. (2002). From the old to the new paradigm of disability and families: Research to enhance family quality of life outcomes. In J. L. Paul, C. D. Lavely, A. Cranston-Gingras, & E. Taylor (Eds.), Rethinking Professional Issues in Special Education. Westport, CT: Ablex Publishing.

  • Turnbull, A., & Turnbull, R. (2006). Self-determination: Is a rose by any other name still a rose? Research and Practice for Persons with Severe Disabilities, 31(1), 83-88.

  • Turnbull, A. P., Turnbull, R., Poston, D., Beegle, G., Blue-Banning, M., Diehl, K., Summers, J. A. (2004). Enhancing quality of life of families of children and youth with disabilities in the United States. In A. P. Turnbull, I. Brown, & H. R. Turnbull (Eds.), Family quality of life: An international perspective (pp. 51-100). Washington, DC: American Association on Mental Retardation.

  • Turnbull, A. P., Turnbull, H. R., Summers, J. A., & Poston, D. (1998). Partnering with families of children with developmental disabilities to enhance family quality of life. In H. Parette, & G. R. Peterson-Karlan (Eds.), Research-based practices in developmental disabilities. Austin, TX: Pro-Ed.

  • Turnbull, H. R., & Brunk, G. (1990). Quality of life and public policy. In R. I. Schalock (Ed.), Quality of life: Application to persons with disabilities. Washington, DC: American Association on Mental Retardation.

  • Turnbull, H. R., & Brunk, G. (1997). Quality of life and public policy. In R. I. Schalock (Ed.), Quality of life: Application to persons with disabilities. Washington, DC: American Association on Mental Retardation.

  • Turnbull, H. R., Turnbull, A. P., Wehmeyer, M., & Park, J. (2003). Taking stock and being serious about IDEA outcomes: A quality of life framework for special education. Remedial and Special Education, 24(2), 67-74.

  • Turnbull, R., Turnbull, A., Warren, S., Marchand, P., & Eidelman, S. (2002). Shakespeare redux: Embedding a terminology and name change in a new agenda for the field of mental retardation. Mental Retardation, 40(1), 65-70.


  • Verdugo, M. A., Gomez, L. E., Arias, B., & Schalock R. L. (2010). The integral quality of life scale: Development, validation, and use. In R. Kober, (Ed.), Enhancing the quality of life of people with intellectual disabilities (pp. 47-60). New York: Springer.


  • Wang, M., Schalock, R. L., Verdugo, M. A., & Jenaro, C. (2010). Examining the factor structure and hierarchical nature of the quality of life construct. American Journal on Intellectual and Developmental Disabilities, 115, 218-233. doi: 10.1352/1944-7558-115.3.218

  • Wang, M., Turnbull, A. P., Summers, J. A., Little, T. D., Poston, D. J., Mannan, H., & Turnbull, H. R. (2004). Severity of disability and income as predictors of parents' satisfaction with their family quality of life during early childhood years. Research and Practice for Persons with Severe Disabilities, 29(2), 82-94.

  • Wehmeyer, M.L. (2000). Assessment of self-determination: Negotiating the mine field. Focus on Autism and Other Developmental Disabilities, 15, 157-158.

  • Wehmeyer, M. L. (2005). Self-determination and individuals with severe disabilities: Reexamining meanings and misinterpretations. Research and Practice for Persons with Severe Disabilities, 30, 113-120.

  • Wehmeyer, M. L., Agran, M., & Hughes, C. (2000). A national survey of teachers' promotion of self-determination and student-directed learning. Journal of Special Education, 34, 58-68.

  • Wehmeyer, M. L., Bersani, H., & Gagne, R. (2000). Riding the third wave: Self-determination and self-advocacy in the 21st Century. Focus on Autism and Other Developmental Disabilities, 15, 106-115.

  • Wehmeyer, M. L., & Bolding, N. (1999). Self-determination across living and working environments: A matched-samples study of adults with mental retardation. Mental Retardation, 37, 353-363.

  • Wehmeyer, M. L., & Bolding, N. (2001). Enhanced self-determination of adults with intellectual disability as an outcome of moving to community-based work or living environments. Journal of Intellectual Disability Research, 45, 371-383. doi:10.1046/j.1365-2788.2001.00342.x

  • Wehmeyer, M. L., & Garner, N. W. (2003). The impact of personal characteristics of people with intellectual and developmental disability on self-determination and autonomous functioning. Journal of Applied Research in Intellectual Disabilities, 16, 255-265. doi:10.1046/j.1468-3148.2003.00161.x

  • Wehmeyer, M. L., & Palmer, S. (2000). Promoting the acquisition and development of self-determination in young children with disabilities. Early Education and Development, 11, 465-481.

  • Wehmeyer, M. L., Palmer, S., Agran, M., Mithaug, D., & Martin, J. (2000). Promoting causal agency: The Self-Determined Learning Model of Instruction. Exceptional Children, 66, 439-453.

  • Wehmeyer, M. L., Palmer, S., Soukup, J. H., Garner, N., & Lawrence, M. (2007). Self-determination and student transition-planning knowledge and skills: Predicting involvement. Exceptionality, 15, 31-44.

  • Wehmeyer, M. L., & Schalock, R. (2001). Self-determination and quality of life: Implications for Special Education Services and Supports. Focus on Exceptional Children, 33(8), 1-16.

  • Wehmeyer, M. L. & Schwartz, M. (1998). The relationship between self-determination, quality of life, and life satisfaction for adults with mental retardation. Education and Training in Mental Retardation and Developmental Disabilities, 33, 3-12.

  • Wehmeyer, M. L., & Schwartz, M. (1998). The self-determination focus of transition goals for students with mental retardation. Career Development for Exceptional Individuals, 21, 75-86.

  • Werner, S., Edwards, M., Baum, N., Brown, I., Brown, R. I., & Isaacs, B. J. (2009). Family quality of life among families with a member who has an intellectual disability: an exploratory examination of key domains and dimensions of the revised FQOL Survey. Journal of Intellectual Disability Research, 53, 501-511. doi: 10.1111/j.1365-2788.2009.01164.


APBS New Logo Site Help | Site Map | Privacy Policy | Contact Us | ©2007-2014 Association for Positive Behavior Support

Back to Top